Since just before Christmas my middle son Harvey who is 6 started to wake during the night seeming very distresses and disorientated and his eyes very glazed with his arms and legs erratically moving. We assumed at first it was night terrors but after this happening for a couple of weeks we was getting very concerned. At the same time we noticed a decline in his school work with reading and writing he was having to go over and over the things he had already learnt. We mentioned it to school and they agreed they had also noticed the decline. They asked if they could allow the senco teacher to work with Harvey for a few days and we thought this would be a good help.
In the mean time we took Harvey to the GP and he referred him to a Pediatrician immediately and got an appointment within that week. The pediatrician decided to send Harvey for an EEG the following day.
We were unsure what the EEG was really looking for and the clinical physician explained it was to check for Epilepsy.........well never for one minute did we assume it could be Epilepsy. The results would be ready in 3 weeks but during that time Harvey had a couple of really bad episodes lasting for 5 minutes.
I called the hospital and the results was faxed through to the Pediatrician straight away and I received a call to say they had found an abnormality on the EEG and they wanted to do another one this time a 24 hr one. Harvey had the EEG fitted on Tuesday afternoon and removed the following day. He was quite excited to show his friends his 'cool' wires which was good as the hospital wanted to monitor Harvey in an ordinary day. Here is my little chappy all wired up, 25 in total!

We had an appointment on Thursday with the Pediatrician and our worse fears were confirmed and Harvey has been diagnosed with Epilepsy. The results from the 1st EEG are pointing toward Temporal Lobal Epilepsy but this is yet to be confirmed. We are now waiting for the results from the 24 hr EEG and he is being sent for an MRI. We have also been left with the decision whether or not to put him on Meds but after speaking to the pediatrician in more detail he strongly recommends we do. This has obviously pushed our final decision into deciding to go ahead and start the meds but it's such a hard one when it's your child and they are so young :( I'm hoping and praying that he won't suffer anymore seizures when he's on the meds but until the right dose is found it's a case of trial and error and finding the right dose to keep him seizure free. They have told us the side affects to expect which are tiredness, grumpiness, and vomiting....not good but anything is better than seeing him have a seizure. They may also help with his memory over a period of time which explains why he has been struggling at school. He has been having very brief seizures during the day for just a couple of seconds and then he is totally confused what he's been learning about.
As if this isn't bad enough our oldest son Owen was also diagnosed a few weeks back with being on the Autistic spectrum but a high Functioning child with Autism. He is such a character with a great sense of humour and a very big heart but when it comes to change he finds it really difficult.
I know with the right guidance and support Owen will do well in life as when he puts his mind to anything he is interested in he really excels.
If you could kindly keep me and my family in your thoughts and prayers it would be greatly appreciated ;)
Hugs